My Acoustic Neuroma Journey
I ended up spending an additional night on HDU, and it would be a couple more days before my world had almost righted itself. My vision however, was still very double and focusing just felt weird. The light sabres in my head had quietened slightly, and I was just left with a more tolerable roaring, …
Continue reading “When You’ve Hit Rock Bottom The Only Way Is Up!”
Apologies for the lack of photos on these next few posts! The day before my surgery, I had an appointment at my local hospital to discuss the results of previous x-rays and CT scans. They had shown lymphodenopathy (enlarged lymph nodes) in my lungs, and whilst they thought it was unlikely, they informed us that …
WARNING:CONTAINS STRONG LANGUAGE! In the weeks that followed my haemorrhage, ‘life’ if you could call it that, had become intolerable. From waking, it would take me as long as an hour to get out of bed, vommitting innumerable times, and get myself downstairs. That was on the days I could be bothered. I was sick …
I recently stumbled upon a quote, “The best thing about the worst time of your life is that you get to see the true colours of everyone.” How true this is. Up until the start of my demise at the beginning of 2018, I’d worked in a primary school, with children who had special educational …
My CT results came back at about 1am and the consultant came into our side room with a worrying sense of urgency. “You have a bleed in your brain, so we’re blue lighting you to Walton” she announced. I really don’t know what I was expecting her to say, but it certainly wasn’t that. I …
Following consultations with Mr Rutherford and Prof Lloyd, we agreed that it would be beneficial for me to have intratympanic gentamycin injections. Now the human body is an amazing thing, and the world of medical science is just something else. An acoustic neuroma also comes with the benefit of you learning practically all there is …
Originally written and posted 19th February 2019 After a somewhat rocky start to 2018, I remember sitting in the room with the senior consultant. The monitor was on, and I remember feeling sick as he said, “When we did your MRI this morning, we found this…”. You didn’t need to be a neurosurgeon to know …
Originally written & published 27th December 2018 Well I’ve been awake since 3am, so I decided to get my musings written down. Hang tight, because this will probably be a long one! I knew from the day I was diagnosed that I would face struggle and hardship, but I also made a promise to myself …
20th February 2018 would be a day that changed my life in unimaginable ways. I was diagnosed with a 3.5cm acoustic neuroma, or vestibular schwannoma, a low grade brain tumour that affects just 1 in 100,000, that was causing brainstem compression and causing all sorts of problems. A few months later, I would also be …
This is the first post on my new blog. I’m just getting this new blog going and transferring a couple of older posts from another site, so stay tuned for more. Subscribe below to get notified when I post new updates. I’m currently trying to get more writing projects off the ground, so if you …
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